| | In celebration of Small Charity Week, we wanted to take a moment to share what we love about working here at SarcoidosisUK. |
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| | | | Graham, Senior Executive | | |
| "One of the attractions of working for a small charity is the speed at which we can do things, and the pace at which we can get results. We know we cannot cure sarcoidosis on our own, but it's great to see the impact of our support services across the country. Our size allows us to build great personal relationships and make a real difference in the sarcoidosis patient community." | | |
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| | | | | Eva, Marketing and Fundraising Manager | | |
| "I am constantly amazed by the generosity and passion of our sarcoidosis community. As a small charity, we truly see the HUGE impact that every donor, fundraiser, and volunteer makes.
I feel lucky to work with such an amazing team and be a small part of the sarcoidosis community."
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| | | | | Mary, Support Services Officer | | |
| "I feel close to our supporters, and I truly see the impact we have as a charity. Not only that, but I also see the commitment of those within our community. Whether it’s our support group organisers, Facebook group members, or our nurses, it’s never lost on me how many people dedicate time to share their knowledge, support and resources, just to make someone else’s journey a little easier." | | |
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If it's not clear already, we absolutely love working here! But our work is truly made possible through your incredible support. Even with just three office staff and three invaluable nurses, we are able to run a Nurse Helpline, 14 support groups, 12 Facebook groups, and much more, all thanks to our remarkable volunteers and supporters. Thank you for everything you do! Visit our website to see the work we do as a charity. |
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| | Have you Seen our Newly Diagnosed Page? | | |
| If you've just been diagnosed with sarcoidosis, it can be overwhelming, scary, and hard to find accurate and clear information about what it may mean for you in the future. That's where we come in. We have created a 'Newly Diagnosed' page to help answer some of those burning questions, such as 'what is the outlook?', 'what support is available?', and 'how can I prepare for an appointment?'. Check out our newly diagnosed page by clicking the button below. | | |
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| | Check out our Sarcoidosis Treatment Page | | |
| We have created a 'Sarcoidosis Treatment' page, with the help of sarcoidosis specialists Dr K. Bechman and Dr J. Galloway. Sarcoidosis gets better without treatment in most cases. In other cases the condition may require treatment. The page covers primary treatments for sarcoidosis, such as corticosteroids, immunosuppressants, and anti-TNF therapy. Click below to find out more. | | |
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| | Thank you to our Amazing Fundraisers! | | |
| We would like to thank all of our amazing fundraisers from June, all of you have gone above and beyond to support us. As a small charity, every fundraiser truly makes such a big impact and we're incredibly proud of you all! This month, we would like to say a big thank you to: - Jon, who ran the Grimsby 10K after being diagnosed with sarcoidosis last year;
- Jack and his team who got stuck in at the Yorkshire Tough Mudder;
- Lorna who ran the Women's 10K Glasgow event to raise money and awareness of sarcoidosis;
- We saw two teams of two, Rachael and Lewis, and Sophie and Charlotte, walk 10 miles at the Peak District Ultra Challenge;
and so many more! We have been overwhelmed by all of the support, we couldn't do it without you! We hope you enjoyed your fundraising as much as we loved having you on our team, we can't wait to see what the rest of the year brings! Are you feeling inspired? Click below to see how you could get involved! | | |
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| | A Special Shout out for Stephanie's 10 Year Anniversary! | | |
| We would like to say a HUGE thank you to Stephanie, her family, and her amazing community, for supporting us for 10 years! Over the weekend, she held her Coffee and Cake event, with books and jigsaws too, and we are always bowled over hearing about the incredible community around her, year after year. Having raised over £14,000 over the years, Stephanie has truly made such a difference to those affected by sarcoidosis, and we can't thank her, and those around her, enough. |
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| | Two New Support Groups Starting! | | |
| Exciting news - we are starting two new SarcoidosisUK Support Groups in the Isle of Man and Cambridge!
The first meetings of the Isle of Man and Cambridge groups are kicking off with in-person meetings on Saturday 26th July.
- Isle of Man Group Meeting - 26th July 12:30pm (In-person)
- East Anglia Cambridge Group Meeting - 26th July 2pm (In-person)
These meetings will mark the start of three new support groups this year. We are thrilled to be able to expand our support group network and bring together people affected by sarcoidosis.
If you would like to join either group, or if you'd like to set up your own group, please contact info@sarcoidosisuk.org for more details!
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| | Do you have Neurosarcoidosis? | | |
| Our friends in the research team at University Hospital Coventry & Warwickshire are conducting a patient survey looking at treatment related side effects in neurosarcoidosis. If you have neurosarcoidosis and have the time to fill out this form, this would greatly help their research team explore side effects associated with treatment. You can find the link to this survey below. | | |
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| | Do you have Gastrointestinal Involvement in Sarcoidosis? | | |
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