For many people with sarcoidosis, it is an 'invisible' illness. You don't have a physical symptom, such as a cast on a broken arm, and so it can be really hard to explain why you may have to cancel plans last minute or why you are too exhausted to get out of bed. Symptoms such as brain fog and fatigue are difficult to understand if you haven't experienced them yourself.
This can make having sarcoidosis really lonely, especially when you hear things like this. However, we have free support available for you to talk to people who truly understand what you're going through.
This can make having sarcoidosis really lonely, especially when you hear things like this. However, we have free support available for you to talk to people who truly understand what you're going through. Join one of our local or Facebook Support Groups, or schedule a call with our Nurse Helpline via the button below.
If you're struggling to explain your sarcoidosis to others, consider ordering our free information leaflets which help to summarise some of the ways sarcoidosis may be affecting you. |