SarcoidosisUK is looking for a new Chair of Trustees to lead our Board and support the next stage of our development.

We are seeking someone with ambition and strategic experience to continue the amazing support for those affected by sarcoidosis and drive forward progress to future proof the Charity.

This is a significant voluntary role for someone with strong board or senior governance experience who can lead the charity and act as ambassador.

Applications close on the 14th September.

Click the button below to find out more about the role and the application process, or if you know of anyone you feel is appropriate for either role, please spread the word! 

Recently, we worked with Professor James Galloway to create a range patient information videos. 

In our new video, Professor James Galloway explains which factors clinicians assess when deciding whether to treat your sarcoidosis and reviews options such as methotrexate and infliximab.

"It’s rarely that one obvious treatment is right. It’s more a choice about how sarcoidosis is affecting an individual, how much it is affecting them, and how much those symptoms are impacting their daily life." - Professor James Galloway

After a scorching summer, we're hoping that cooler weather is on the way this autumn! As the weather gets colder, it's a great opportunity to get outside and move your body. Why not set yourself a goal and sign up to a fundraising challenge!

From 5k's to an ultra marathon, we have it all! Click the link below or send us an email on info@sarcoidosisuk.org and take the first step towards a new challenge.

Dani and her labrador Frida, along with the support of her family and friends, are taking on a 100km walk this September to raise vital awareness of sarcoidosis in support of Dani's husband, Andy. 

Andy has neurosarcoidosis, which was identified when he became paralysed from the waist down at the start of 2025. We are so grateful for their support and know this walk will help to spread the word and help to support others affected by sarcoidosis. 

If you can, please show your support by making a donation to their fundraising page below. Any donation, big or small, will make a huge difference.

Good luck - we'll be cheering you both on every step of the way!

Earlier this year, we shared a link to a survey asking those affected by pulmonary sarcoidosis to share their experience of being a parent with a chronic lung condition. Thank you to everyone who took part! Parenting While Sick have written this blog post that shares the key findings!

The results highlight some important gaps in the support that parents need to help their families cope with a chronic illness. For example, 80% of parents said their doctor has never asked how their condition affects their family, while only 8% said their family had received formal training from a healthcare professional on using their medications or equipment. 

Take a look now to read the full findings from the report, to find out the key challenges facing parents, and a link to Parenting While Sick, who offer incredible free resources to parents with a chronic lung condition.

We've had a quiet summer here at SarcoidosisUK, but no matter how busy we are - we are always here to support you! We have a number of services available dedicated to support anyone affected by sarcoidosis. 

Nurse Helpline:

The Nurse Helpline is a free and confidential telephone helpline. We help support patients and anyone else affected by sarcoidosis. All calls are taken by the SarcoidosisUK Nurses who have personal and/or professional experience of sarcoidosis.

Support Groups:

SarcoidosisUK run a network of Support Groups across the UK. Our groups are an opportunity for you to share your experiences of sarcoidosis, learn from others and be heard by people who truly understand what you’re going through.

Facebook Groups:

It can be so helpful to meet with like-minded people in a similar position to you. The Facebook groups are full of really knowledgeable, supportive members, who are always keen to offer support and answer any questions you may have about your sarcoidosis.

Please see below for the dates of our upcoming support group meetings. If you would like to attend, please email info@sarcoidosisuk.org. Anyone affected by sarcoidosis is welcome - so come along and join us!

• London Group Meeting - 7th September 7pm (Online)
• Bristol Group Meeting - 15th September 7:30pm (Online)
• London Group Meeting (Kew Gardens) - 20th September 11am (In-person)
• North West Group Meeting - 21st September 6:45pm (Online)
• East Anglia Group Meeting - 26th September 2pm (Online)