One in 10 Americans suffers from a rare disease. Former Globe health reporter Felice J. Freyer speaks with Pamela Gavin, the current CEO of the National Organization for Rare Disorders, about rare illnesses that affect more people than you might think.
Twelve-year-old Henry Bennett has a great sense of humor, adores his younger sister, and loves riding the MBTA. He is also the only known person with a rare genetic condition that has left him with a host of chronic health issues. Kara Baskin speaks with Henry’s mother about the trials — and joys — of raising a child with a rare disease.
Event
Hear more from both Pamela Gavin and Rachel Bennett at the Globe’s Rare Disease Summit on February 25. To learn more and to register, visit this link.
An infectious diseases doctor and the director of the Harvard Global Health Institute writes about the human toll of the Trump administration’s cuts to foreign aid. If our political leaders don't change course, she says, the loss in lives will be devastating.
For over 1 million Massachusetts residents, community health centers are the only access point to essential primary care, writes Michael Curry, the president and CEO of the Massachusetts League of Community Health Centers. However, federal funding freezes are making it harder to access these centers. If community health centers continue to close because of federal funding freezes, the quality of care will decline for everyone.
In the Age of Economic Warfare, the US drug supply is a weak link
Economic warfare is the new normal, writes Edward Fishman, author of Chokepoints: American Power in the Age of Economic Warfare. But Americans’ access to life-saving drugs remains worrisomely exposed. To stay healthy, the US must adapt.
When her daughter was fighting stage IV cancer, all Amy McHugh wanted was a guarantee that she'd be OK. Fifteen years later, back at the hospital coffee shop, McHugh connects with another parent searching for hope.
When it comes to spices, “just a pinch” often doesn’t cut it. Christopher Kimball and the cooks at Milk Street share three dishes, including Turmeric-Braised Chicken with Onion and Ginger, built on bold seasoning blends.
Picky eater
This reader’s friend is such a picky eater that, during a recent dinner, he sent two pizzas back. Should the reader be upset at his behavior? We’re diving deep into 20 years of Miss Conduct — this column is from 2007 — to uncover conundrums you may have missed.
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